Advocacy /

Advocacy Partner Resources

Alliance for Patient Access –

The Alliance for Patient Access is a national network of physicians dedicated to ensuring patient access to approved therapies and appropriate clinical care.
http://allianceforpatientaccess.org/

American College of Rheumatology –

The ACR advocates on behalf of rheumatologists and the rheumatology community through involvement in federal and state legislation and regulatory action, participation in hearings, and educating lawmakers on issues important to rheumatologists, health professionals, and patients.
https://www.rheumatology.org/Advocacy

Arthritis Foundation –

The Arthritis Foundation is the Champion of Yes. We lead the fight for the arthritis community through life-changing information and resources, access to optimal care, advancements in science and community connections. Our goal is to chart a winning course and make each day another stride towards a cure.
http://www.arthritis.org/

Coalition of State Rheumatology Organizations –

The CSRO is comprised of over 40 state and regional professional rheumatology societies whose mission is to advocate for excellence in the field of rheumatology, ensuring access to the highest quality care for the management of rheumatologic and musculoskeletal disease.
http://csro.info/home.aspx

Global Healthy Living Foundation –

The Global Healthy Living Foundation is a non-profit organization with the mission to improve the quality of life for people living with chronic illness. Learn more about us here. Below are our core Advocacies.
https://www.ghlf.org/

National Fusion Center Association –

The National Infusion Center Association (NICA) was established as a nonprofit patient advocacy organization to provide a national voice for office-based Infusion Centers across disease specialties in the interest of improving patient access to high-quality, cost-effective care.
https://infusioncenter.org/

National Organization of Rheumatology Managers –

The National Organization of Rheumatology Managers (NORM) is an organization comprised of members involved in all aspects of rheumatology practice operations.
https://www.normgroup.org/

National Psoriasis Foundation –

The National Psoriasis Foundation (NPF) is a non-profit organization with a mission to drive efforts to cure psoriatic disease and improve the lives of those affected.
https://www.psoriasis.org/

Rheumatology Nurses Society –

The Rheumatology Nurses Society (RNS) is a professional organization committed to the development and education of nurses to benefit its members, patients, family and community.
http://rnsnurse.org/

The Alliance for Transparent & Affordable Prescriptions (ATAP) –

The Alliance for Transparent & Affordable Prescriptions (ATAP) is a coalition of patient and provider organizations functioning at both the state and national level who have joined together to address pharmacy benefit managers (PBMs) and their impact on prescription drug costs and patient access to affordable treatment.
https://atapadvocates.com/

Medicare Access and CHIP Reauthorization Act (MACRA) –

Learn about MACRA. Visit American College of Rheumatology’s (MACRA) FAQs, glossary, and resources pages to find the most up-to-date information on this important and developing topic. And watch your inbox for ACR’s MACRAlerts. Each MACRAlert will provide vital MACRA news.
https://www.rheumatology.org/MACRA

CMS Website –

The Medicare Access and CHIP Reauthorization Act of 2015 (MACRA) is a bipartisan legislation signed into law on April 16, 2015.
https://www.cms.gov/

Quality Payment Program –

Prior to the Quality Payment Program (QPP), payment increases for Medicare services were set by the Sustainable Growth Rate (SGR) law. This capped spending increases according to the growth in the Medicare population, and a modest allowance for inflation.
https://qpp.cms.gov/

Step Therapy –

This website is a resource for patients, providers and policymakers to learn about step therapy/fail first protocols and access helpful information impacting state statutes.
http://www.steptherapy.com/

 

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